​Karen James, mother of a daughter with a rare genetic syndrome, offers a heartfelt and honest perspective on the everyday realities of raising a child with intellectual and physical disabilities. She shares the challenges, the joys, the daily “to-do’s,” and the lessons she’s learned about advocacy, resilience, and love along the way.

 

With a little humor and a lot of reality, Karen shares her personal journey through:

 

• The highs and lows of raising a child with special needs who is also medically complex

• Navigating systems—educational, medical, and community—that often feel anything but caregiver-friendly

• Practical tips for how the process of navigating systems can be improved—for parents, educators, and community or state agencies alike​​​